We are waiting on the final enzyme test to verify that Bridget's diagnosis is in fact LINCL (please refer to the previous blog entry).This should take no more than 10 days to 2 weeks. However, Bridget has clinical presentation and a skin biopsy consistent with this disease. This last test is like crossing our t's and dotting our i's. Plus I imagine we'll need this info once we decide where we'll go for treatment.
I've done a LOT of research and am fired up to get going.
I will start a website dedicated just to Bridget- she is more than deserving.
I wanted to just say thank you for the emails and calls and prayers.
I am humbled, but determined and will ask more of you in the future, I'm sure.
Please stay tuned for a new website.