We had a good meeting with Dr. Shah today. Both Dave and I really like him. He was with us for almost an hour regarding the rookie....Bridget. I took copious notes as he answered questions before we even thought or asked. It feels like the beginning, but at best we are much more informed.
We are pursuing a MRI to see what is happening in Bridget's brain. This can answer the "why" is she having seizures. However, only a small percentage (15 to be exact) of the whys are answered through this. 85% of the time, doctors do not know why a seizure happens. Which actually, isn't a bad thing. The child will most likely grow out of them then. We are hoping for the latter.
We will continue medication and monitor it closely with a repeat EEG (at the end of May) and meet with Dr. Shah again at the beginning of June. We have to give the medication time to really work. The goal is two fold 1) to stop her from having seizures and 2) to retrain her brain not to have them ever again. The average time for this is 2 years. Fortunately #2 is possible in children only. So we have that going for us.
This blog is certainly taking on a life of its own. I never expected it to have information about our daughter. "We do not know what we ought to pray for." ROMANS 8:26. Sometimes I think about this at night. Most of the time it's the regular stuff, esp that we get to sleep through the night. Seems pretty normal in this unusual turn in our lives. Sleep tight and God Bless your little ones, too.
5 comments:
Sara! We are thinking of you and praying that all goes well!
Love and prayers to you and Bridget (Dave and Harrison, too!). "Everyday take some time to fill your spirit."
Annie, Jeff and Charlie
Hi Sara,
Thanks for this blog where we can find out all about you. Tom & I have you, Bridget, Dave and Harrison close in our prayers and our hearts. We are praying for the Lord's guidance and healing for you all. We love you so much!
Tom & Susie Mitchell
Sara - It's Melissa here, your old cheerleading buddy. I found out about your diagnosis through a long trail of people praying for you all over the country. Your courage, strength, and sense of humor through this time are absolutely outstanding, and I will continue to pray for you (as will my family). I am saying my prayers for your beautiful little girl, also, and I hope you have some answers soon. Stay strong, and if you need a cheerleader one day - let me know and I'll yell one as loud as I can from Arizona for you. Love and take care, Melissa (Galus) Belle
Sara,
You and your family are constantly in our thoughts and prayers. We are so sorry you are going through this difficult time.
Take care,
Laura, Chad, Alec, Ana and Leah Chandlee(Falb)
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